FAIRVASC – building registry interoperability to inform clinical care

The Czech Registry

The Czech Registry of ANCA-associated vasculitis (AAV) was established in 2009 by the team led by Prof. Vladimir Tesar in Prague as a multi-centre project aiming to support clinical care and research in the field of AAV in the Czech Republic. The Registry has collected both cross-sectional and longitudinal data on patients diagnosed with AAV in several centres of different medical specialties (mainly Nephrology, but also Rheumatology or Immunology) distributed across the whole country. Information collected in the Registry includes basic clinical, laboratory and demographic data, as well as regularly updated data on disease course, complications and administered treatment in majority of included patients.