Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, and also the national and international legislation and regulations that apply to FAIRVASC. D2.3 is the final in a series of deliverable describing information governance compliance across the FAIRVASC registries.
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Peter Verhoeven (chairman Vasculitis NL) writes about FAIRVASC in the magazine (Vascuzine) of their Dutch patient organization. Please find both the Dutch […]
The FAIRVASC project held its first (kick-off) meeting over 2 days (03rd and 09th June 2020). All partners were represented, and the meeting was […]
by Julie Power (Vasculitis Ireland Awareness) Thank you to EURORDIS for this opportunity to attend this event, as one of 44 participants […]
FAIRVASC-focused meeting was held in Barcelona during the 21st International Vasculitis Workshop on 9th of April 2024. FAIRVASC Session 12:00 Welcome and Introduction […]