Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, and also the national and international legislation and regulations that apply to FAIRVASC. D2.3 is the final in a series of deliverable describing information governance compliance across the FAIRVASC registries.
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The FAIRVASC consortium held its second plenary meeting on 05 July 2021 (delivered online due to the COVID-19 Pandemic). Project partners from […]
Peter Verhoeven (chairman Vasculitis NL) writes about FAIRVASC in the magazine (Vascuzine) of their Dutch patient organization. Please find both the Dutch […]
Interview with Karl Gisslander about the role and tasks of HIT in FAIRVASC project has been published.
The FAIRVASC consortium had a very active involvement at the 20th International Vasculitis and ANCA Workshop 03-06 April 2022, held in Dublin, […]