Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, and also the national and international legislation and regulations that apply to FAIRVASC. D2.3 is the final in a series of deliverable describing information governance compliance across the FAIRVASC registries.
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The FAIRVASC consortium had a very active involvement at the 20th International Vasculitis and ANCA Workshop 03-06 April 2022, held in Dublin, […]
Interview with Karl Gisslander about the role and tasks of HIT in FAIRVASC project has been published.
FAIRVASC Technical Coordinator Professor Mark Little recently presented the FAIRVASC project at the EUVAS and UKVAS meetings on 02 and 12 Nov […]
by Julie Power (Vasculitis Ireland Awareness) Thank you to EURORDIS for this opportunity to attend this event, as one of 44 participants […]