Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, and also the national and international legislation and regulations that apply to FAIRVASC. D2.3 is the final in a series of deliverable describing information governance compliance across the FAIRVASC registries.
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The FAIRVASC project held its first (kick-off) meeting over 2 days (03rd and 09th June 2020). All partners were represented, and the meeting was […]
The FAIRVASC consortium will meet for a Plenary meeting in the Conference Center at the Faculty of Medicine in Kraków, Poland on […]
Interview with Julie Power about the involvement and role of patient organizations in FAIRVASC project has been published.