by Julie Power (Vasculitis Ireland Awareness) Thank you to EURORDIS for this opportunity to attend this event, as one of 44 participants from all over Europe. Thank you also to the FAIRVASC project for funding my travel costs (https://fairvasc.eu/ ). This project has received funding from the European Union’s Horizon 2020 […]
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The FAIRVASC consortium will meet for a Plenary meeting in the Conference Center at the Faculty of Medicine in Kraków, Poland on Friday 20th Jan 2023, the day before the FAIRVASC Hackathon. As part of this meeting the FAIRVASC technical team will host an onboarding workshop for those registries wishing […]
We are happy to announce that POLVAS Team will host a FAIRVASC HACKATHON on 21st Jan 2023! FAIRVASC has developed a proven methodology for AAV registries to uplift their data and support federated queries based on the FAIRVASC ontology. A prototype FAIRVASC Dashboard has been developed providing a secure user […]
1) FAIRVASC has released a new data quality analysis lately. Can you comment on it? Major differences with respect to the previous run are: 1. the addition of two new variables (namely CRP at diagnosis and induction treatment) amongst the ‘DQ core variables’, and 2. the stratification of the DQ […]
The second and third quarters of 2022 brought personnel changes in FAIRVASC. Kris McGlinn has left the FAIRVASC project. Thanks to his skills and coordination of the FIT team work, a first version release of the FAIRVASC infrastructure was achieved, which was demonstrated at the Vasculitis & ANCA Workshop 2022 […]
We are happy to present an analysis of the data quality from the FAIRVASC registries. The Data Quality Team on behalf of the consortium conducted an analysis of the following domains: uniqueness, consistency, completeness and correctness. Registries achieved a score of 100% in terms of uniqueness and consistency of data. […]
The 20th Vasculitis and ANCA workshop in Dublin was preceded by a conference for patients (April 2-3, 2022). The organization of the event was the result of collaboration between Vasculitis International member groups, FAIRVASC team members, and EULAR Patient group members, led by Julie Power of Vasculitis Ireland Awareness. Financial […]
The FAIRVASC consortium had a very active involvement at the 20th International Vasculitis and ANCA Workshop 03-06 April 2022, held in Dublin, Ireland (https://vasculitis2022.org/ ), a conference which was hosted by FAIRVASC technical coordinator Professor Mark Little of TCD. After a three-year break, vasculitis researchers had the opportunity to meet, […]
After months of hard work, the FAIRVASC team is proud to announce the release of version 1 of the user support interface or Dashboard. The FAIRVASC core operational team of Kris McGlinn, Matthew Rutherford and Karl Gisslander presented the possibilities offered by the Dashboard during the recent 20th International Vasculitis […]
The FAIRVASC consortium recently reached the half way point of the FAIRVASC Project! To discuss our completed tasks and future goals the team met in Florence, Italy in December 2021 where Professor Augusto Vaglio organized an amazing space for our panel discussion. Representatives of each institute and the patients organizations […]