One of the tasks of the POLVAS team was to organize and conduct a Hackathon which had 2 aims: 1) to analyse other methods of designing a user interface that can support federated queries (user interface track) and 2) to analyse other system solutions to return aggregated, anonymous, FAIR data […]
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On 20 January 2023 the representatives of the FAIRVASC consortium had the opportunity to meet once again at a plenary session and discuss both the progress of the work packages so far, but also the next steps of the cooperation.The host of the meeting was the JUK team, which hosted […]
by Julie Power (Vasculitis Ireland Awareness) Thank you to EURORDIS for this opportunity to attend this event, as one of 44 participants from all over Europe. Thank you also to the FAIRVASC project for funding my travel costs (https://fairvasc.eu/ ). This project has received funding from the European Union’s Horizon 2020 […]
The FAIRVASC consortium will meet for a Plenary meeting in the Conference Center at the Faculty of Medicine in Kraków, Poland on Friday 20th Jan 2023, the day before the FAIRVASC Hackathon. As part of this meeting the FAIRVASC technical team will host an onboarding workshop for those registries wishing […]
We are happy to announce that POLVAS Team will host a FAIRVASC HACKATHON on 21st Jan 2023! FAIRVASC has developed a proven methodology for AAV registries to uplift their data and support federated queries based on the FAIRVASC ontology. A prototype FAIRVASC Dashboard has been developed providing a secure user […]
1) FAIRVASC has released a new data quality analysis lately. Can you comment on it? Major differences with respect to the previous run are: 1. the addition of two new variables (namely CRP at diagnosis and induction treatment) amongst the ‘DQ core variables’, and 2. the stratification of the DQ […]
The second and third quarters of 2022 brought personnel changes in FAIRVASC. Kris McGlinn has left the FAIRVASC project. Thanks to his skills and coordination of the FIT team work, a first version release of the FAIRVASC infrastructure was achieved, which was demonstrated at the Vasculitis & ANCA Workshop 2022 […]
We are happy to present an analysis of the data quality from the FAIRVASC registries. The Data Quality Team on behalf of the consortium conducted an analysis of the following domains: uniqueness, consistency, completeness and correctness. Registries achieved a score of 100% in terms of uniqueness and consistency of data. […]
The 20th Vasculitis and ANCA workshop in Dublin was preceded by a conference for patients (April 2-3, 2022). The organization of the event was the result of collaboration between Vasculitis International member groups, FAIRVASC team members, and EULAR Patient group members, led by Julie Power of Vasculitis Ireland Awareness. Financial […]
The FAIRVASC consortium had a very active involvement at the 20th International Vasculitis and ANCA Workshop 03-06 April 2022, held in Dublin, Ireland (https://vasculitis2022.org/ ), a conference which was hosted by FAIRVASC technical coordinator Professor Mark Little of TCD. After a three-year break, vasculitis researchers had the opportunity to meet, […]