Interview with Julie Power about the involvement and role of patient organizations in FAIRVASC project has been published.
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Interview with Kris McGLinn about the role and tasks of QIT in FAIRVASC project has been published
by Julie Power (Vasculitis Ireland Awareness) Thank you to EURORDIS for this opportunity to attend this event, as one of 44 participants […]
Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, […]
The 20th Vasculitis and ANCA workshop in Dublin was preceded by a conference for patients (April 2-3, 2022). The organization of the […]