We are moving towards the first version release of the FAIRVASC infrastructure. We have designed a couple of very simple queries for this and now want to start designing the overall FAIRVASC queries that we envisage being available to FAIRVASC users. This is heavily informed by clinical knowledge, so we are keen to involve as many of the clinical PIs as possible.
You may also like
Peter Verhoeven (chairman Vasculitis NL) writes about FAIRVASC in the magazine (Vascuzine) of their Dutch patient organization. Please find both the Dutch […]
One of the tasks of the POLVAS team was to organize and conduct a Hackathon which had 2 aims: 1) to analyse […]
FAIRVASC Technical Coordinator Professor Mark Little recently presented the FAIRVASC project at the EUVAS and UKVAS meetings on 02 and 12 Nov […]
Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, […]