We are moving towards the first version release of the FAIRVASC infrastructure. We have designed a couple of very simple queries for this and now want to start designing the overall FAIRVASC queries that we envisage being available to FAIRVASC users. This is heavily informed by clinical knowledge, so we are keen to involve as many of the clinical PIs as possible.
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Within FAIRVASC Workpackage 2 (WP2) will capture the legal and ethical environment of each registry, patient perspectives on data sharing and re-use, […]
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